My day from hell. Its becoming a trend for me.

Today was the day that we were suppose to get some answers. We had appointment with my daughter rheumatologist the one that came highly recommended. His assistant came in and had no clue about her disorder and pretty much said she couldn't treat her. Finally the big dog came in, he has at least heard of her disorder but actually never treated anyone with it before.

I am at a lost to be honest. My soon to be 19 year old daughter is almost completely dependent on me for her care. This second bout of this has affected her speech, she is in so much pain I can't touch her. The only way we can give her a little relief from the uncontroled movement is by giving her a sedative to knock her out and that doesn't take it completely away.

Once again I feel defeated, but I won't give up my daughter is counting on me.

Nic